Lyme Basics

• Lyme Spirochete Textbook
• Lyme Rash Photos
• Tick Photos
• Tick Removal Guidelines
• Centers for Disease Control and Prevention
• Medical Literature Summaries
• MedlinePlus Information
• Reported Lyme Cases (CDC)
• Lyme Disease Western Blot
• Potential For Misdiagnosis
• Columbia University Research

Cyberounds - InterMDNet

Welcome to Cyberounds®; interactive grand rounds moderated by distinguished academics, exclusively for physicians, medical students and other selected health professionals 

Deutsche Guillain-Barre Syndrom CIDP Selbsthilfegruppe für Europa

Deutsches Arthroseforum

• Wir sind eine Internet-Selbsthilfegruppe von Arthrose-Betroffenen mit über 26.000 Mitgliedern. Das Selbsthilfeforum bietet - von Betroffenen für Betroffene - Erfahrungen aus erster Hand. Eine Grundlage für unseren Erfahrungsaustausch spielt dabei das von uns gepflegte Arthrose-Therapie-Verzeichnis mit mehr als 200 Arthrose-Therapien.(Silvia Diana Kaczmarek, Initiatorin und Leiterin)
• Arthrose und Borreliose (Google-Suche auf dem Server des Deutschen Arthroseforums)

A. Doherty

Zusammenstellungen von Art Doherty, Lompoc, California, USA.

• Over 3,100 categorized links on Lyme disease
• Frequently asked questions about Lyme, zusammengestellt aus Fragen/Antworten der newsgroup sci.med.diseases.lyme
• Persistence or Relapse of Lyme Disease despite "appropriate" or "conventional" antibiotic therapy
1. Links
2. Persistence or Relapse of Lyme Disease - A Bibliography with Highlighted Full Abstracts
• Lyme and autoimmunity
• option for finding the latest medical or scientific information on Lyme disease would be to go to this web page: Weekly, monthly and yearly citations added to MEDLINE for Lyme disease (Contains future, current, and past search links). 

(another way of doing this).

Greater New York Lyme Neurological Disorder Support Group

• comprehensive list of over 300 research publications on Lyme neuroborreliosis,
• ask the experts,
• events and meetings.

The Human Side of Lyme: Research & Writings Of Virginia T. Sherr

The Human Side of Lyme contains much material that I have written over the last 8 years, published abstracts, whole articles and many previously unpublished papers. I have included illustrative Clipart whenever possible. There are case history stories and editorial essays concerning "tick-borne issues". If you feel they are appropriate for your patients'/clients'/friends' reading, just let them know the address or copy the story for their use. Each case history may fit some aspect of many of your friends or patients. (August 22, 2005)

Virginia T. Sherr, MD
47 Crescent Drive
Holland, PA 18966
USA

NEW (as of May 14, 2006)
Virginia T. Sherr, "Bell's Palsy of the Gut" and Other GI Manifestations of Lyme and Associated Diseases, Practical Gastroenterology, April 2006.

International Lyme and Associated Diseases Society (ILADS)

• Lyme and Associated Tick-Borne Diseases Related Sites
• Evidence-based guidelines for the management of Lyme disease, Expert Rev Anti Infect Ther 2004;2(1 Suppl):S1-13 (im Cache)

  This report, completed in November 2003, is intended to serve as a resource for physicians, public health officials and organizations involved in the evaluation and treatment of Lyme disease. (Report Summary)

  Highlights of Guidelines

  • Since there is currently no definitive test for Lyme disease, laboratory results should not be used to exclude an individual from treatment.
  • Lyme disease is a clinical diagnosis and tests should be used to support rather than supersede the physician's judgment.
  • The early use of antibiotics can prevent persistent, recurrent, and refractory Lyme disease.
  • The duration of therapy should be guided by clinical response, rather than by an arbitrary (i.e., 30 day) treatment course.
  • The practice of stopping antibiotics to allow for delayed recovery is not recommended for persistent Lyme disease. In these cases, it is reasonable to continue treatment for several months after clinical and laboratory abnormalities have begun to resolve and symptoms have disappeared.
  • im Cache: Diagnostic Concerns
  • im Cache: Treatment Considerations, e.g. combination antibiotic treatment with
    1. oral amoxicillin, cefuroxime, or (more recently) cefdinir combined with
    2. a macrolide (azithromycin or clarithromycin)
       • The brandname of cefdinir is Omnicef. As of 2007, data on penetration of cefdinir/Omnicef into the cerebrospinal fluid, csf, are not available. (in cache: Clinical pharmacology, Omnicef drug info)
       • Hunfeld KP, Rödel R, Wichelhaus TA, In vitro activity of eight oral cephalosporins against Borrelia burgdorferi, Int J Antimicrob Agents. 2003 Apr;21(4):313-8.

Jemesek Clinic - Diagnostic and Research Facility

16630 NorthCross Drive
Suite 102
Huntersville, NC 28078, USA

The mission of the Jemsek Clinic is to provide the highest possible level of care for each patient. We pledge to do this by choosing to care and by continuing to study and evolve in the science and art of medicine, a most noble profession.

LYME DISEASE IN THE CAROLINAS by Joseph G Jemsek MD, Christie Roeske, FNP, And Kelly Trogden, PAC

This is a treatise on persistent Lyme disease, or more correctly, neuroborreliosis, and is written for the physician who wishes to learn and for the motivated patient or patient advocate who has an interest in advancing the cause.

Lyme Alliance

Remember that you are not alone. There are many caring people in the Lyme community willing to help you through your experience with Lyme disease, and we are here to lead you to that help. 

Lyme Disease Research Studies - Links

Established in 1994, the Lyme Disease Research Program of the New York State Psychiatric Institute is the first in the United States to focus research efforts on the neuropsychiatric aspects of Chronic Lyme Disease in adults and children. 

Lyme Disease Action

Lyme Disease Action accepts and adopts the medical guidelines (Evidence-based guidelines for the management of Lyme disease, Expert Rev Anti Infect Ther 2004;2(1 Suppl):S1-13 -im Cache- ) issued by The International Lyme and Associated Diseases Society (ILADS).

Charitable aims
The relief of persons suffering from Lyme Disease, other Borrelioses and associated diseases in particular but not exclusively by:

1. Raising awareness of the public at large including conferences, information and support.
2. Scientific and Medical Education and Research in topics related to Lyme Disease, other Borrelioses and associated diseases provided the useful results of such research must be published.

Some of the LDA links:

• WVVH Hamptons TV (Long Island, New York) has created a one-hour program "Lyme Disease: Medical Nightmare" (Part One, Part Two) that is viewable online on YouTube. Dr. Burrascano and other leaders in the U.S. Lyme community are interviewed.
• 2008 Conference
  The 7th UK Tick Borne Conference was on Friday 18th July 2008. The conference was based at John Foster Hall, University of Leicester.
  • Lyme disease - An elusive diagnosis. (3.2MB) Dr David Owen - GP and Lyme borreliosis practitioner based in Cardiff, UK.
  • An overview of neuropsychiatric Lyme disease. (1.3MB) Dr. Robert Bransfield - expert in neuropsychiatric Lyme disease.
  • How tick ecology determines risk. (3.2MB) Professor Sarah Randolph - the UKÕs foremost tick ecology expert.
  • Lyme in Pregnancy. (0.8MB) Dr. Sarah Chissell - consultant obstetrician and gynaecologist.
  • Chronic Lyme Disease. (1.2MB) Dr. Robert Bransfield - expert in neuropsychiatric Lyme disease.
  • Lyme Disease Action. (0.1MB) Stephanie Woodcock, LDA Chair.
• Abstracts on the persistence of Lyme

Lyme Disease Association, Inc.

The Lyme Disease Association (LDA), an organization which recently expanded its focus nationally, is dedicated to Lyme disease education, prevention, and raising research dollars. In its search for a cure for chronic Lyme, the LDA has already funded dozens of research projects coast to coast, some of which are featured in peer-reviewed journals, such as Journal of the American Medical Association, JAMA. In addition, the LDA has sponsored several national medical conferences, including the first to focus on the problems of children with Lyme disease. ...

Since the LDA's inception, ninety-seven cents of every dollar raised has been used on programs. In the past year since going national and affiliating, the LDA and its new affiliates have raised over $2 million to fight the disease.

"Unfortunately, much more funding is needed, and we need a facility that concentrates its efforts on finding the answers to this Lyme enigma," said Pat Smith, president of the LDA.æ To that end, the LDA and its affiliate, GLDTF, are creating an endowed Lyme Disease Research Center at Columbia University ("Center"). Brian Fallon, MD, associate professor of clinical psychiatry and director of the current Lyme Disease Program at New York Psychiatric Institute, will be the Center's director.æ He is considered by many to be the leading expert on neuropsychiatric manifestations of Lyme disease.æ The LDA has funded some of his past research including the study which provided him with data needed to obtain the recently awarded $4.7 million grant from the National Institutes of Health for studying the effects of Lyme disease treatment using state-of-the-art brain imaging.æ

On LDA's website:

• Doctoral Referral
• Conflicts of Interest in Lyme Disease. Laboratory Testing, Vaccination, and Treatment Guidelines.
• LDA Primer on Lyme Disease
  
• Marcus Cohen, Lyme Disease Update: Science, Policy, & Law

Lyme Disease Audio Network

among others: R.C. Shoemaker: Alternative Lyme Treatment. (In this two part segment, you will hear Dr. Richie Shoemaker discuss a treatment he is testing for use in the battle of chronic Lyme disease.)

Lyme Disease Network Online

Lyme Disease Resource Center (LDRC)
now under new name: California Lyme Disease Association (CALDA)

The California Lyme Disease Association, a non-profit organization, was founded in 1990 by a group of individuals who had personal experience with Lyme disease. They wanted to do something to help people who were suffering needlessly because doctors were not well informed about this newly emerging infection. Many legitimate Lyme patients could not get diagnosed or treated, and, for those who did, a quick and simple cure was often elusive. Education and support services were desperately needed. The first Board of Directors of the CALDA decided the goals of the CALDA should be:

• to educate the public about Lyme disease, including risk factors and prevention;
• to provide services for Lyme disease patients, their families and friends;
• to provide a forum for physicians and health professionals for the exchange of ideas and information about symptoms, diagnosis, and treatment of Lyme disease;
• to act as a communications and information center for individuals and groups who are working to help patients of Lyme disease;
• and to encourage Lyme disease research.

The current members of the CALDA Board of Directors represent both the medical and patient communities. They serve as volunteers.

Check out the first edition of the Lyme Times ONLINE and the Lyme Times Archiives.

The Lyme Times is the premier publication of the Lyme disease community. The online version contains many of the articles which make the printed version an increasingly popular source of information for both patients and physicians.

LymeInfo.Net

Tick Borne Diseases| Lyme Advocacy| OPMC Controversy | News Coverage | Lyme Vaccine | Complementary Therapies | Health  | Books |

HOME | "LymeInfo" Email list | Off Topic

• Lyme Files
1. Lyme Disease Diagnosis and Treatment
2. Medical Literature Summaries
   (Lyme Disease Symptoms, Persistence, Cysts, Seronegativity, Spirochetes)
3. Brochures and Flyers
4. Web-Based Material 
5. Neuro-Cognitive Lyme Disease
6. References for Psychiatry and Lyme/Tick-Borne Diseases

LymeRICK - Lyme borreliosis and Related Infections Centre of Knowledge

"Proposal for LymeRICK topics to work on

I suggest all LymeRICK discussion group members pick a favorite topic and start working on covering it ... later we discuss the collected material in the group in order to reach consensus and thus in time I hope the LymeRICK group will be able to present the best and most extensive reviews ever made on every topic regarding tick borne diseases :)

• The more complete the reviews the better, so any input -critique, comment, additional references, improvement of language etc.- is very welcome both to be displayed in the submitted form or in upcoming reviews.
• Non-members: please send your notes to kroun@ulmarweb.dk.

In the past the intention of the LymeRICK group was not really fulfilled, since most people that entered the group came there to seek information, very few were able to provide articles and reviews. Finally, the group outlived itself when the ILADS discussion group was created. (ILADS offers to ILADS members a discussion forum on yahoo groups.)

Well, I still add my own work and try to keep the LymeRICK site, reviews / links updated as much as time allows me ...

SO if YOU want to share your scientific work, reviews, pictures, video's (whatever related to TBI) either on my webserver or you want LymeRICK's links to point to your work elsewhere on the Internet - you're very welcome to send me a note :)

New on LymeRICK in 2003

1. Notes on many babesia papers
   tentative title: "Babesia in Denmark ?" - will be the subject of my next talk in York, June 2004.
2. Newest addition of original work by me is my York 2003 presentation in Power Point format: "A pilot study on 'granulated cellular structures' and other abnormal microscopy findings in blood from chronically ill patients"
   • with a review of some historic references on spirochetal granules,
   • light blue underlined links lead to more detailed information,
   • some of the videos are in WMV format and require a fully updated Windows with Media Player9 for playback.

Regards
Marie Kroun, MD - Denmark."